Jul 13

If You Can’t Take the Heat …

Writing is to descend like a miner to the depths of the mine with a lamp on your forehead; a light whose dubious brightness falsifies everything, whose wick is in permanent danger of explosion, whose blinking illumination in the coal dust exhausts and corrodes your eyes.

Blaise Cendrars (Swiss/French)

For several months of the year, Phoenix resembles the origins of its name.  Days burst into flames, only to leave people panting in a heap of their ashes by nightfall.  I’m mostly a puddle, rather than dry ashes.  By the end of October, the desert comes to its senses and rises to present its inhabitants with temperatures more realistic and less flammable.

If you’re wondering, this mention of the Phoenix desert has absolutely nothing to do with the quote at the top, except that the cool air of a mine would be welcome relief today.  Yesterday, we topped out at 115F and maintained triple digits until late into the night.  We didn’t need lamps on our foreheads; we merely glowed with heat, the skin of our fingers were seared when we touched the handles of our cars.  The brightness was neither dubious nor false in its illumination.  Even sunglasses and wide-brimmed hats didn’t turn down the light.

Still, in the middle of the hottest day yet this summer — a record setting day — people were out on bicycles or hiking the many desert mountain trails near my house.  They were JOGGING!  Crazy people, no doubt.  People who’ve had one too many knocks on the head, I imagine.  People who haven’t the good sense God gave a duck.

Me?  I exercised in my house.  In the center of our downstairs area is a staircase walled on three sides.  It makes a perfect square to walk around.  And around.  And around.  The dogs stand off to the side and watch their mistress “walk the square” as I call it.  Around and around.  They look at me as if I’m crazy.

In fact, I mutter to myself while I walk the square — only for the sake of the dogs, of course, who consider craziness just another form of fun.  My muttering, circling, forays around the square only serve to complete the picture of a woman, dazed by the Arizona heat in July, who just wants to move a bit without having to drive to the mall.  The mall isn’t really that great for walking unless you get there before all the texting teenagers who don’t look where they’re going.  Still, other than the square in my house, it’s the only cool place in all of Phoenix.

Except maybe the movie theater, which if you close your eyes and plug your ears, for just a moment it might resemble the cool, dark depths of a mine.

Jul 09

Take a Breath, Dear

So here’s how it went:  I told on my husband.  I gave away his nighttime secret — to the doctor, no less.  There we were, two happy little people sitting in the doctor’s office, following up on some teensy-weensy little medicine change, when I blurted out a statement that shall forever change the way Dan and I conduct our nighttime business.

“I think Dan has apnea,” I said, my throat filling with the pleasure of a do-gooding wife who reads way too information on the internet.  But there I was telling on my husband … asking about sleep apnea and if it really can cause sudden death.  We don’t do sudden death in our house.  It’s not allowed, like drinking from the toilet bowl or licking clean the bottoms of our shoes would be frowned-upon behavior.  The thought of tragic rainclouds smudging our still-vibrant loveliness is unthinkable and forbidden.  The horror of even a moment’s notion of my beloved’s sudden death is simply not acceptable.

So, I told on him.

I blathered on about his snoring … and how in the midst of the cacophony that sings from his nightly throat, he often becomes quiet and still — and eerily silent — before loudly gasping in a sonorous boom that causes the dogs to shift position and hold their paws over their ears.  I told how it happens over and over all night long.  And how his sudden, loud, nearly violent, inhalations wake me.  How I curve myself to match the shape of his sleeping body, listening to the ebb and flow of his breath.  How I wonder how long I should listen to those moments of growing silence before I should drag him feet first off the bed to breathe life back into his suddenly quiet mouth.  How I’ve memorized the cadence of CPR counting, should it be needed.   Poor Dan.  What could he say?

“Nuh huh.  No way.”

“Yuh huh.  Way.”

So, my desperately shy guy spent last night in a sleep study facility, in his jammies, hooked to wires and probes — without his evening glass of wine, without the familiarity of his home, or the comfort of his own bed, or his habit of falling asleep in the middle of a David Letterman punchline.  Nevertheless, he bravely endured “The Study.”  This morning he came home with a diagnosis of Obstructive Sleep Apnea and an order for a full CPAP (continuous positive airway pressure) machine that he will need to wear over his mouth and nose every night.  Poor Dan.

But me?  I’m crowing!

I told on my husband.  Yes, our nighttime is soon to be punctuated with the hiss of an air machine.  Yes, Dan will forever need to be strapped to a machine whenever he sleeps.  Yes, our bedroom will be newly-decorated with the likes of medical equipment, complete with its hoses and buttons and what-nots.  Yes, he is mortified.  Yes, yes, yes and yes.

Still, I’m contenting myself this morning with the thought that some information gathered from that series of tubes known as The Internets and The Google may have — SAVED.  HIS.  LIFE.

So, I’ll continue to tell on him like a kid telling on a naughty friend — again and again and again — until we are so old we’ve lost all good sense and the notion of slipping off into the night only wake up dead doesn’t sound like such a bad idea after all.

In the meantime, take a breath, dear.

Jul 03

When You Hold Your Breath

My parents claimed often and vociferously that I was born with my grandfather’s white-hot Irish temper.  They swore there wasn’t a diaper change, a feeding, a bath … a moment …  that wasn’t accompanied by needle sharp shrieks that melted every microscopic cochlear hair deep inside the whorls of their ears.  They claimed that the sounds from my tiny body could peel wallpaper and liquefy the floor.

At two, my mother kept a leash around my waist because I followed strangers.  Down the street.  Out of sight.  Not even a glance back.  Buh bye, gone.  I vividly recall as a four-year old, kicking a hole in my bedroom door because I didn’t want to change out of my princess dress and into play clothes suitable for digging in the sandbox.  In the end, I changed clothes … but a child’s size 4 shoe hole seemed evidence enough to me that I had won that battle.

I was also that charming child who could wheedle and whine her way to candy before dinner and a third popsicle right before bed.  If something made me cry, I threw my whole body into it — holding my breath until I turned blue and fainted.  Literally.  I held my breath until I fainted.

Thank goodness I grew out of those shrieking, kicking, tantrum-giving, fainting episodes.  My days as a wild Irish heathen (as my mother referred to me), ended at around six.  From that time on, I was, ah-hem, a model child.  I was perfect.  The Irish family curse was broken.

Now it’s back.

Well, not the screaming tantrum part, but rather the other family curse part.  It seems I’ve got the bad … I mean really, really bad … cholesterol level that has bedeviled (and killed) many of my family members.  Yes, I have the oh-my-god, I could have a heart attack or stroke any second now because of these cholesterol numbers thing.  Apparently, the arteries of this sweet-natured, formerly-bad-Irish-girl-gone-good have quietly been clogging up.

This just makes me want to hold my breath until I turn blue.

Instead, I’ll take my medicine and hope to goodness that the sludge that’s been silently building will have the good sense to reverse course.

Not a lick of gravy is henceforth allowed to touch these lips.  I’m off the double cheeseburger wagon for good, and you know those french fries? gone like a two-year-old without her leash.  I’m off the sauce and … gulp! … on the treadmill.  Yeah, baby … it’s the old diet and exercise routine for me.

Either that or I hold my breath permanently … and I’m just too cursed with that family streak of stubborn Irish to let that happen yet.  So if you need me, I’ll be the squatty gym babe on the StairMaster, third from the end.  You know, the limping woman with the chronic sinus condition.  Yeah, that one — the one trying to keep her really bad Senator Levin comb over in place while sweating out all those bad cholesterolies — all the while fondly daydreaming of sweet by-gone days of steak and mashed potatoes drowning in butter.

Wish me luck.

Jun 29

Is That a Noodle I Hear?

This past week has been something, hasn’t it?  First we heard of Ed McMahon’s passing and all I could think of was how he was the greatest second banana — ever.  He was eighty-something.  Then, Farah Fawcett died.  There wasn’t a teenage boy who didn’t have that red swimsuit poster of her above his bed.  She embraced her sex-symbolness unabashedly and then went on to surprise everyone with some powerful acting chops (The Burning Bed, for one) and finally her grace and courage as she documented her own brave fight with cancer.

Next it was Michael Jackson — talented, tortured, gifted and genius all in one very odd little package.  No one can deny his music, though.  It occurred to me that kids could always listen to the lyrics of every one of his songs without having parental controls enforced over the content.

Last night we heard that the ultimate TV pitch man, Billy Mays, died a couple of days after hitting his head in a rough airplane landing.  I guess the Sham Wow guy will have to step up now to continue the legacy.

Two not-so unexpected deaths and two bolts out of the blue.  I mention this only because I woke up last night with a clattering thought about mortality and fragility and … oh my god, is this a heart attack or the last spaghetti noodle finally sliding its way into my stomach after eating a late dinner?  I’m still here so it must have been dinner.  Nevertheless, it could as easily have been a misplaced heartbeat.  Or an aneurysm.  Or a sudden knot in my bloodstream.  Or not.

Several days ago, a tiny snippet of a mystery piece I wrote received first prize from a very prestigious website contest.  I wrote a short, short mystery I titled, Death by Dust Bunny, about a cleaning lady, or as she would call herself, a Home Management Professional, who watches an unfortunate dust bunny flutter in the breeze of her final breath.  I threw it together in just a couple of hours and entered at the last second, knowing the piece was filled with writing boo-boos and structural skinned knees. It was perhaps a writerly thing that needed to be killed, but instead lived long enough to win first prize.

Now we have real life mysteries to solve.  Did Michael Jackson take one too many dance steps with prescription drugs?  Was Billy Mays killed by his airplane seat?  Will I stay away from those late night spaghetti plates?

While I’m waiting for the answers to these very compelling questions, I think I’ll pull out my police procedures and forensic science books.  Others will solve the Jackson and Mays mysteries.  Me?  I’m going to polish up that short little first prize piece because now I’m really curious why someone would kill a nice little cleaning lady (er, Home Management Professional).

Oops, excuse me … I think I hear my next book calling my name — and this time it’s a MYSTERY!!!

Jun 28

Say Whaa, Whaa?

Like many, I have a busy mind.  A very, VERY busy mind.  Unfortunately, while this lovely mind of mine is zipping around telling me this grand thought and speaking of that profound notion … all I hear is the adult voice that also plagued Charlie Brown — Whaa whaa, Whaa whaa, Whaa whaaah.

I don’t hear, sit up straight, eat your vegetables, hey, let’s go walk that thirty minutes on the treadmill.  I only hear, Whaa whaa, Whaa whaa, Whaa whaaah.

I don’t hear, write, write write.  I only hear, Whaa whaa, Whaa whaa, Whaa whaaa.

But I have a number of good reasons for being deaf to my better angels.  Truly.  Thousands of good reasons.  Here are only a few of my myriad excuses:

  1. It’s summer in Phoenix.  No one is expected to actually DO anything in Phoenix during the summer.
  2. It’s winter in Phoenix.  No one is expected to actually WORK when the weather is so beautiful.
  3. I clearly announced that my diet starts tomorrow.
  4. My feet hurt.
  5. My hair is too tight for my head.
  6. What?
  7. But I LOVE [fill in the blank].
  8. Are you gonna eat that?
  9. But my fingers are too puffy to type.
  10. I was just gonna get to that … honest … really.

Feel free to borrow any reason you’d like … or add your own to the list.  Anything to quiet that noisy, insistent, rambling, incessant, really-it’s-good-for-you …

… Whaa whaa, Whaa whaa, Whaa whaaah.

Jun 25

A Dancing? Bird

I was asked the other day just how I decide a blog topic for any given post.  “How do you know what to write about?” was the question.  I had to think about that.  Really.  I usually just let fly before thinking where I’m going.  Outline?  Not me.  Beginning, middle, end?  Hardly.  Write first in draft so I can carefully edit?  Never.

I often spend considerable time writing something and posting it, only to dismantle it minutes later, hoping I got to it before anyone happens upon what is certainly a poor and paltry effort.  Or something inappropriate.  Or banal.  Delete, Delete, Delete is more commonly my battle cry than I care to admit.  When one’s wings are made of spoons, the ability to propel oneself into a literary sky is often diminished.  Unfortunately, fighting rigid wings is my usual state of being.

Darn those hard, inflexible, tarnished spoon-wings.

To make matters worse, the metallic taste in my dear little beak only points out the rigidity of the rest of my bolted-together mind.

Why so hard on myself?  Maybe because I know the process of writing anything — a blog post, a page of prose, some dialogue, a journalistic effort, a small poem — comes with the obvious responsibility to actually say something.

Let’s take this morning as an example.  After peering into the mirror for the millionth time this week, hoping against hope that I’ll find just one small and brave fledgling hair on the top of my head, I honestly don’t know what to say. There is no volunteer hair — only the sight of a growing land-mass of scalp surrounded by a receding tide of hair.  I want to say something about that.  I want to write about the beauty of bald women everywhere.  If not that, then I want to enunciate the tragic disappointment of going bald in a hair-filled world.  I’d like to wildly sing about Popeye the Sailor Man who “likes to go swimmin’ with bald-headed women.”  I want to find not only the eloquence, but also the elegance of yet one more human condition to conquer, if not at least to understand.

But my wings are made of spoons.  Rigid, hard, unyielding spoons that simply cannot fly in the face of this particular misfortune.

Bald after brain surgery or chemotherapy when one knows that shaved or chemically altered hair will slowly grow back is so completely different from bald forever for no good reason.  Me, whine?  Yes.  Vociferiously, ad nauseum, standing-in-front-of-the-mirror crying huge crocodile tears, day after day whining.

“It’s part of the grieving process,” my husband points out.  “Process, Schmocess,” I retort.  “You try going bald and see how it feels,” I cry.  “Um, I am bald,” he offers, pointing to a circle of scalp on the back of his head.  “Yeah, well … well … you have a boy hair.  It’s supposed to fall out!” I say before resuming my tearful search for that one little hair that I know is not going to show up for active duty.

So there you have it.  That’s the best I can muster this morning.  It’s one day’s worth of not-so grand Eloquence.  Less-than perfect Elegance.  Hardly soaring Dialogue.  Yet, these are the words of a small bird momentarily overwhelmed by the incomprehensible in the world of all things female.  Maybe it’s simply one more blog post that will go up for one nanosecond before my better angels swoop in to press Delete, Delete, Delete.

But then again, maybe there’s another spoon-winged bird out there who might be struggling with his or her own image in the mirror.  Maybe we’ll find a way to even slightly bend the rigidity of profound disappointment for yet another part of life — the forever de-hairing of our heads.  Maybe we’ll stop obsessing over our falling hair and instead sing the Popeye song — loudly, with our chins held high and our chests bursting with joy.

I like to go swimmin’ with bald-headed women.  I’m Popeye the Sailor Man.  Boop Boop.

Maybe tomorrow.

Jun 19

The Terrible Truth of Silence

I love noise.  Life is noisy.  It bangs and clanks and booms and clicks.  It’s cloudy.   It’s sticky.  Life makes sound and I love every thunderous moment.  I like it when doors and cupboards are opened and closed with a grand Taa Daa! rather than with a shrug and a quiet apology.  I love when the skies open with boisterous bangs and watery splashes, only to be soaked up by our thirsty Arizona desert and my equally-hungry ears.

Life SHOULD be noisy.  And relished.  And listened to.  And heard.  A while ago, we had these kicking speakers installed in the ceiling of our family room so we’d have surround sound of the highest order.  Now we can pop in a DVD and crank the sound until the cells of our bodies liquify.  It’s glorious!

I love my noisy life because I know it’s the silent moments that have always ruined me.

I’m destroyed by days when Dan and I don’t speak, but rather move about the house like very quiet, unseen ghosts.  We’re aware of the presence of each other, yet we’re silent.  We don’t speak.  We don’t acknowledge as we pass in the hallway or sit side-by-side on the couch.  I know it’s really the comforting quietude of a married couple in deep companionship, but nevertheless, I don’t trust those moments.

I have a reason for disliking silent times that otherwise would signal a welcome respite from the constant cacophony of daily life.  I’ve found that the most terrible things seem always to be unannounced by noise or words or warnings.  Things that go bump in the night are not nearly as terrifying as the instant just before one’s foot steps on a life-turning dime.  There is a dizzying silence even in that thousandth of a second between the crashing together of cars and the Pop! sound of the deployment of a life-saving airbag.

It was within the silence of a growing brain tumor that everything I knew of security and safety was forever changed.  Even now, just one quietly falling hair, circling down the shower drain can serve to bedevil me.  Then there’s that tiny, fragile moment of unspoken concern for my still-frightened legs at the top of every flight of stairs.  There’s also that now and again grabbing and holding and listening for something — anything — that might give an answer for that cloud passing through my brain.

It’s also that short, or long, apex between an argument and the I’m sorry that follows.  It’s that nanosecond between television programming and the louder decibels that signal the abrupt insertion of commercial material.  It’s the pause of my fingers over the computer keyboard that means I can’t think what next to type.

Yes.  It’s still the silence I hate.

Today, it’s the stoic silence on the face of Scarlett, our Golden Retriever.  Her left hip screams a winding course through her body, but all we hear is the silence of a foot that no longer touches the floor.  Today, the proper firing sequence of doggie toenails clicking across the floor is missing one crucial cylinder.  Today, one leg is held away from the ground so it touches nothing.  It makes no noise.  This now-quiet left leg has abandoned its running, fetching, toe-clicking joy.  Without the ability to form words, Scarlett quietly, silently, gently beseeches me for help.  I give her pills from the vet.  I wait as medicine moves and melts, without a sound, through her stomach and into her blood stream.  But not even powerful pain pills seem to help this hip thing — this miserable, arthritic, elder dog, hip dysplasistic, quietly ruinous thing.

God, I hate this kind of silence.

Jun 15

A Shiny New Normal # 12

By mid-September, I could carefully maneuver most places with a cane, albeit a bit tipsy on occasion.  My legs still fought me over stairs, but I showed them who was boss with some fancy cane and rail-holding techniques.  My mouth worked somewhat with what now could be mistaken for some sort of slow drawl (neither Southern nor charming, I should add).  One of my lovely neighbors showed me how to hide my shining baldness with a bit of wiggery and creative scarf tying.  When she finished with me, I looked like a Gypsy preparing to read the future.

I was ready!

I was more than ready to get back to my office with its fast-paced challenges.  I could walk.  I could talk.  Certainly, I could manage sitting at a desk.  I could do it.

But here’s what I couldn’t do:

  • Count on a static, boring life from now on.
  • Fix my eyes on any one star and claim it as my true north.
  • Know all those future dimes on which my life could turn.

Every morning — when my eyes opened once again — I managed to locate the day’s pure possibility.  Maybe I no longer jumped out of bed, but rather carefully positioned my legs, gently talking to them before asking them to stand and carry their load.  Maybe I was more thoughtful before allowing my mouth to embarrass itself.

Maybe through the removal of 6.5 centimeters of brain tumor, I gained a 6.5 centimeter hole ready to be back-filled with whatever might become of this shiny new normal.  There were new paths to walk, gentle words to let fall like petals along those paths.  My goodness, I needed to occupy myself with the business of growing back a few wisps of stalwart hair.

Since July 6, 1994, everything that has issued forth has come from a dark roundness, slightly larger than a golf ball, deep in the bottom of my brain.  Every step.  Every word.  Every action and every precedent thought.  When I was still in the hospital, a friend said to me that I seemed a different person.  I would agree.  I am a different person; I’m now imbued with a certain knowledge that making something good out of something really bad isn’t a choice — it’s a necessity.

Understand, I never expected to have a brain tumor.  I never thought I’d fall through that Wonderland of rabbit holes and nonsensical outcomes to end up fifteen years later still here.  Five years ago, I was honored to serve on a Survivors’ Panel at the National Brain Tumor Association’s annual meeting.  I attended one particular session given by a well-known doctor in the field of neurology.  After mentioning that the average time between diagnosis and death for a brain tumor patient is eighteen months, he was asked by a shaken and frightened woman how he handled telling people they were going to die.

“I never tell anyone they’re going to die,” he said, pointing to me.  “I always figure you’ll be the survivor, the one who will well outlast us all … and I treat you as such.  Yes, the statistics sound grim, but every patient who walks into my office is my latest survivor.”

Now and then, I hear a miserly little voice that wants to convince me to feel bad because I was one who beat the odds.  Survivor’s guilt, it’s called, and it’s a ridiculous waste of emotion.  In my case, every lemon was squeezed into lemonade, but not necessarily by my own hand.  My tumor was found.  It was operable.  I was fortunate to have a brilliant surgeon whose hands were not satisfied until every remnant of tumor was removed.  I was lucky to be a paycheck-to-paycheck working girl just wanting to keep a roof over my head.  Being not of means propelled me to get out of bed and work, work, work so I could get back to work, work, work.  I had family, neighbors and friends who were selfless enough to look after me during those early days.  I had colleagues who were generous enough to give me the time and money needed to get — literally — back on my feet.

Finally, I had a good stubborn Irish heritage that taught me to see beyond what could certainly be considered a blighted heap of disappointment and rather, keep digging for the “good potatoes.”  If it was one twitch of a stubborn leg, I held on to it like a nugget of gold.  If it was one intelligible word, one follicle of hair, one moment aside from the crushing fear that surrounds the word, “tumor,” I took it.  I took every small thing I could.

The cumulative effect of any good moments, however small, eventually outnumbered the bad days.  I was different, for certain, but that “shiny new normal” hasn’t been so bad at all.  Here’s what it’s like for me now, fifteen years later:

  1. I no longer need wheels or sticks to get around.  Instead, I have a grand “fuzzy cane” in the form of a Labradoodle named Wilson.
  2. I can converse with the best of ’em now — just ask my beleaguered husband — he’ll tell you so.
  3. I almost have some hair … almost.
  4. It took five years, but I can now close my eyes and bow my head without spinning out of my seat with dizziness.
  5. My imagination and curiosity have led me to a writing life of quiet pleasure.
  6. In some ways, I wish I’d had this type of “normal” all along — I could have skipped all those youthful indiscretions and not been like Annie singing It’s a Hard Knock Life at the top of my lungs.
  7. But then again, I wouldn’t change a hair on my little hairless head.

I’ll end this narrative now to resume my regularly-scheduled programming of zipping around from one topic to the next.  That’s what my new brain does.  It zips!

I’ll leave with this, however.  Last evening, I attended a dinner to help raise money for a young single mom whose six year-old daughter is nearing her last days because of a brain tumor.  Six years old!  I have no good words for the brutality of that situation.  I only know that some of us survive; some do not.  And that shiny new normals sometimes seem neither shiny nor welcome, but rather, cruel and incomprehensible.

There is no sense to be made of tragic illness — either yours or that of someone else.  I hold no answers.  I don’t even know the questions.  I only have an experience to tell and, with that, if anyone gained even a small hope from these twelve short posts, then yay!  Hold on.  Sometimes that Donna Summers I’m Gonna Live Forever song contains the only sense to be made of it all.  I’m gonna learn how to fly, the song lyrics say.

So here’s a last thought:  Do your best to learn to fly.  If your wings break, fly in your thoughts.  If your brain breaks, fly in your heart.  If your heart fails, as eventually they all do, then let’s all meet up in that grand Somewhere Else where we can cheer each other on and EVERYONE can display their brand spanking, sparkling … Shiny New Normal.

Stay well, everyone.

–Auburn McCanta

Jun 10

A Shiny New Normal # 11

I spent all of August and part of September helping my one Amazing, Fabulous, Glorious Over-Achieving Brain Cell recruit others in kind of an Amway-esque pyramid scheme.  You get five friends and they get five friends and down the line, we’ll all be grandly rewarded.  Every day I bumped my way down the stairs and into the swimming pool for the Auburn Pool Wall Clutching Method of water aerobics.  At this point, I should mention that I absolutely HATE cold pool water.  Even in August with triple digit temperatures the norm more than the exception, that water felt like ice cubes down my neck.  But through gritted teeth, each day my legs found more confidence.  By mid-August, they were taking steps without my having to tap them first.  I still recited “left leg, right leg” in my head, but on a good day I didn’t have to tap at all and occasionally I’d even screw up the courage to let go of the side.

Without telling the doctor, I graduated myself from sitting endless days in a wheelchair.  By the end of August, I got around with a walker and even tempted fate now and then wobbling about in my apartment with a cane.  There was always a wall or piece of furniture on which to steady myself and if I fell … I figured someone would check on me eventually.

Ahh, there’s nothing like a dwindling bank account to propel one’s legs (and brain cells) toward excellence.

I worked on my mouth too.  In the delightful cool of those evening summer Sacramento Delta breezes, I sat on my small apartment patio and read books aloud.  I started out with the heavy slur of one who might have suffered a tragic stroke.  My tongue and lips were on permanent slow-as-you-go and the task was to speed my speech enough that others could understand me.  For example, a quick Hi sounded more like, Hiiiiiiaaaaahhh.  It felt like enunciating in a vat of mud.  But once again, I wondered if there was one Bright, Amazing, Over-Achieving Word-Loving brain cell willing to wake up its sleeping neighbors.

Yes, all through August and half of September — every day — I walked in water.  I read through mud.

My hair jumped into the game and valiantly tried to resume its rightful place on my head.  Sadly, the score was Head – 1, Hair – 0.

Nevertheless, I was a pool-walking, mouth-moving whirl of baldness under a baseball cap.  And as my father might have said … Life, she was Good!!!

Jun 07

A Shiny New Normal # 10

Thank you for your patience during this uncharacteristically long intermission.  We now resume our regularly scheduled program, already in progress.

The day following my free-wheeling, jibberish-hollering, whooptie-do through the winding corridors of my apartment complex, my helper decided that I was a handful too large for her small hands.  With her lips pursed into what looked like the top of a drawstring bag, she backed out of my door without explanation.  None was necessary.  She’d signed on to take care of me before she found out that I would wake up one day with such enthusiasm that I couldn’t help but make her an unwilling participant in my vociferous, unintelligible shout-out to anyone within range.  My behavior had been neither demure, nor proper and I couldn’t blame her for abandoning her post.  She’d been hired to cook, feed, clean, wipe, tiptoe and silently read.  She had no idea I wanted a party!

So I was helper-less.  But I wasn’t helpless.

Word spread quickly that I was now a lone wolf in need of a pack.  The apartment ladies organized a meal briggade and the guys were handy in helping me out of bed and into my chair.  Now instead of one helper, I had more help than I knew what to do with.  After just a couple days of all that neighborly hovering, I sent everyone away with huge thanks and a brave grin.

I had a refrigerator filled with fabulous home-cooked meals and I was able to scooch myself in and out of my wheelchair easily.  (Remember, I wasn’t paralized … just disconnected between brain and legs.)  I was able to stand, sit and scoot myself around fairly well.  Little niblets of hair had begun to give my head a good five-o’clock shadow.

I.  Was.  Awake.

It was August now and the pool below my balcony was busy with swimmers and lined up with swim-suited sun lizards all greased up and nicely frying on their lounge chairs.  Sacramento is a heat-lovers’ delight in the summer with its triple digit days and balmy breeze-filled evenings.  The pool below was a blue magnet.  It called to me.

Auburn.  Aaauuubbuuuuurrnnn.

When I could no longer stand hearing the siren call of that beautiful blue pool, a wild thought flashed through my now tumorless brain.  If I could get into the pool, and hang on to the side … maybe I could convince my legs to move.  Maybe there was one over achieving brain cell that still knew the Macarena and was able to teach its neighbors.  Maybe those legs of mine could dance yet.  The equipment was all there.  I just needed to turn on the electricity.

The stairway to the pool was just two steps from my door.  Literally.  Two steps.  I wheeled myself to the door, opened it and with a deathgrip on the doorframe, I stood.  I was so close to the entry to the pool, I needed nose plugs to keep from inhaling that fresh, cool water.  Holding the doorframe with my right hand, I let my left hand flutter to the side of my leg.  I patted my leg.

“Left leg,” I said aloud.  “Left leg.”

My left leg took a small, halting step.  Damn!  Hooray for one good brain cell, I thought.

I was now halfway to the top of the stair railing.  Just one step to go.  Precariously reaching my left hand toward the top of the railing, I bravely let go of my grasp on the doorframe.  If this didn’t work, I was about to do a serious taa daa trick down a long flight of very hard cement stairs.

“Right leg,” I quivered, tapping the leg with my right hand.

My right leg took enough of a step that my left hand was then close enough to grab hold of the stair railing.

I did it!  IdiditIdiditIdidit!!!

Except now I was at the top of a flight of stairs.  I could just as well have been on the moon.  There was no way I could “left leg, right leg,” tap myself down that stairwell.  So, I did the only reasonable thing for a bald-headed, jibberish-speaking, rubber-legged woman.  I sat down on the top stair.  Then I butt-scooched my way down those hot cement stairs, across a ten-foot expanse of only slightly less- hot cool deck and all the way ino the shallow end of the pool.  That glorious, butt-cooling, leg-encouraging blue expanse of pool.

With one hand on the side and a grand look of relief on my face, I took one big water step to the cheers of an incredulous audience and the crowing delight of my one Amazing, Fabulous, Glorious Over-Achieving Brain Cell.